Some South Yorkshire CANN Organisations
Sheffield Parent Carer Forum is an independent local charity run by and for parents of children and young people with special educational needs and disabilities. We connect almost 2,000 families from across Sheffield to provide mutual support, share information and influence policy and practice. We support families by: Providing an information and signposting service Organising information events and training sessions for parents Organising social events where families can meet each other Gathering parents’ views and representing them at strategic meetings Providing training to raise awareness of the issues faced by our families It’s free to join – you can join via our website (www.sheffieldparentcarerforum.org.uk/become-a-member/) or call us on 0300 321 4721 to request a membership form.
St Mary’s Church and Conference Centre, Bramall Lane, Sheffield S2 4QZ
Sheffield Parent Carer Forum
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: email@example.com. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: firstname.lastname@example.org or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
Based on commitments made in the NHS Long Term Plan, the SYB ICS Children & Young People’s Alliance seeks to improve outcomes and reduce health inequalities for all those aged 0 -25 by delivering the national Children and Young People’s Transformation Programme.
NHS Sheffield CCG 722 Prince of Wales Road Darnall Sheffield S9 4EU