Children’s Additional Needs Network
Are you a parent/carer with a child or young person who may have additional needs and/or disabilities (no diagnosis required)? If so please come along and join us for an informal coffee, cake and a chat. (This coffee morning is for those over the age of 16,…
Rotherham
Our Virtual Drop-in takes place on Mondays during term-time (excluding bank holidays) from 10am until 12 noon. The aim of the group is to provide a welcoming and inclusive environment, enabling parents and carers of children and young people (aged 0-25)…
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: info@undiagnosed.org.uk. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: joinus@undiagnosed.org.uk or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
Define Fine has been created by a small, committed team of parents and professionals who have lived experience of school attendance difficulties We are a parent/carer-led organisation set up in response to the growing number of children and young people who experience school attendance difficulties. This is sometimes referred to as ‘school refusal’, or emotionally based school avoidance and may be due to unmet Special Educational Needs & Disabilities including physical or mental illness, either suspected or diagnosed, bullying or issues relating to academic pressure, or even the school environment. We provide peer support, using our tried and tested resources and to help parents advocate for the support their children and young people need to be able to learn and achieve. We hope to build up our growing network of peer supporters, who we can train to use our guides for their own family and ultimately to then help other families experiencing attendance difficulties. Empowering parents to be able to effectively work with professionals, should encourage not only earlier intervention, with much better outcomes, but also reduce the risk and impact of unhelpful, and unnecessary attendance prosecutions and social services safeguarding interventions. It is vital that children, young people […]
Bluebell House Gumley Leicestershire LE16 7RU
Talkin Tarn is a new community group set up in Barnsley to support SEND parents and carers. Our aim is to have therapy drop in days, workshops and regular weekly meet ups aka tea, biscuits and a chat to support SEND parents and carers. Our weekly meet ups are on Monday’s from 10am – 11:30am at the Priory Campus in Barnsley Carers Society (Making Space) community room
Talkin Tarn Barnsley Carers Society (Making Space) community room Priory Campus, Pontefract Rd, Barnsley S71 5PN
Sense Specialist Services for Children & Young People is a team of specialist teachers of multisensory impairment (QTMSI) and MSI practitioners. We have a wide range of skills and experience working with children and young people who are deafblind/ multi-sensory impaired. The team supports: Children and young people who are deafblind/multi-sensory impaired Children and young people who have medical conditions that are likely to cause problems with sight and hearing as they grow older – for example Usher syndrome. We also offer some support to children (and their families) who have either a hearing or vision impairment, and additional needs, which impact on their access to information, communication and mobility. Sense Services 1.Early Intervention and Play Service (EIPS): We want families to see a more positive future, and for siblings to have more chances to have fun and share experiences with their peers. This new service will be led by a team of skilled early years practitioners. We will deliver a programme of early intervention and developmental play sessions, giving families the chance to understand their child’s unique needs and abilities, develop new strategies to communicate with their child and to grow in confidence in navigating their child’s health, wellbeing, […]
Unit 2 Thornes Park, Monckton Road, Wakefield WF2 7AN
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