Children’s Additional Needs Network
Tuesday 5.00pm-6.00pm
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: info@undiagnosed.org.uk. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: joinus@undiagnosed.org.uk or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
Define Fine has been created by a small, committed team of parents and professionals who have lived experience of school attendance difficulties We are a parent/carer-led organisation set up in response to the growing number of children and young people who experience school attendance difficulties. This is sometimes referred to as ‘school refusal’, or emotionally based school avoidance and may be due to unmet Special Educational Needs & Disabilities including physical or mental illness, either suspected or diagnosed, bullying or issues relating to academic pressure, or even the school environment. We provide peer support, using our tried and tested resources and to help parents advocate for the support their children and young people need to be able to learn and achieve. We hope to build up our growing network of peer supporters, who we can train to use our guides for their own family and ultimately to then help other families experiencing attendance difficulties. Empowering parents to be able to effectively work with professionals, should encourage not only earlier intervention, with much better outcomes, but also reduce the risk and impact of unhelpful, and unnecessary attendance prosecutions and social services safeguarding interventions. It is vital that children, young people […]
Bluebell House Gumley Leicestershire LE16 7RU
Amy’s House -work with young children from the age of 8yrs+(Saturday’s and school holiday’s)with complex needs ,learning difficulties and challenging behaviours. Molly’s Mates caters for young adults from the age of 18 with complex needs, learning difficulties and challenging behaviours.We offer flexible models of care & support.Our vision is to be at the centre of excellence and implementing services that support children & young people with all aspects of complex and individual needs.We strive as a charity to ensure the people we support are able to live a happy & healthy lifestyle within their community. Molly’s Mates runs Monday to Friday 9am to 3.30pm, we offer a drop off & pick up service where possible. For further information please contact us on our email at enquiries@amyshouse.org.uk or call us on 0114 3492920.
Amy"s House Arbourthorne Lodge Guildford Avenue Sheffield S2 2PL
One of our main aims is to support children with a limb difference and their families. This could be simply chatting in our closed group, linking people with others in the same situation and providing the opportunity for our children to meet other limb different children at Activity days and parties to realise that they aren’t alone. We support families, raise awareness of LD, create 3D printed aids, visiting schools and linking with other charities and universities doing research. We provide all our services free of charge.
9 Shepherd Way Royston Barnsley S714fx
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