Children’s Additional Needs Network
February 26, 2025 1:00 pm
More scheduled dates
This event has no entrance fee
Online
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07908624549
katie@bringingustogether.org.uk
https://bringingustogether.org.uk/
The Children’s Air Ambulance is an inter-hospital transfer service flying babies and children from one hospital to another for specialist care.
Head Office: Blue Skies House Butlers Leap Rugby Warwickshire CV21 3RQ
The Eden Dora Trust for children with Encephalitis was formed specifically to offer support to children and their families affected by Encephalitis and childhood Acquired Brain Injuries through support, information, education and research. We support children in hospital with Encephalitis and families after hospital discharge, advice on re-integration to school, different forms of rehabilitation, along with working on an Acquired Brain Injury schools award and much much more including raising awareness and funding research into the causes, diagnoses & treatments of Encephalitis/A.B.I; We hold study days & fund training workshops for families, teachers and health care professionals involved with the ongoing care and rehabilitation of children affected by Acquired brain injury and this life changing illness. Helping children and their families feel less isolated, different, misunderstood and alone. The Eden Dora Trust works with the help of their extensive advisory panel and is the only charity in the UK dedicated solely to children who suffer from Encephalitis, that anyone can get, at any time. Our Mission SPEAK: Support – for those affected by Encephalitis to find out about what help is available and how they can access it. Provision – of funding to support further research into the causes, symptoms and potential cures for Encephalitis Education – funding essential training for those […]
Sheffield
SWAN UK is the only dedicated support network for families of children with undiagnosed genetic conditions. Approximately 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose. Without a diagnosis it can be difficult to access basic information and support. We have information leaflets below which are available to download. We are developing leaflets in further languages and these will also be available to download once they are completed. If you can’t find the answer to your question in the resources below or would like to make an enquiry please email: info@undiagnosed.org.uk. Our animation called ‘Ellie’s story’ explains what it means to have an undiagnosed genetic condition and how SWAN UK helps. Click the link to find out more: bit.ly/elliesstory We offer 24/7 information and support through our online forums for registered members. If you would like to become a SWAN UK member please email: joinus@undiagnosed.org.uk or click here to find out more. Don’t forget to check out our news section and join our mailing list too.
Genetic Alliance UK SWAN UK CAN Mezzanine 49-51 East Road London N1 6AH
We bring disabled people and family members/carers together on line to share experiences and learn together. We offer a wide range of workshops and sessions led by people with lived experience including well being and coping with anxiety, Direct Payments, Advocacy, Social Care and Health. We give disabled people and families the opportunity to amplify their voices and a platform to have honest and well facilitated conversations.
Bringing Us Together, 15 Savile Park Gardens, Halifax, West Yorkshire. HX1 2XL
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